April is Primary Immune Deficiencies Awareness Month

April is Primary Immune Deficiencies Awareness Month , Get Details

Primary immunodeficiency diseases are a group of relatively rare conditions caused by intrinsic or genetic defects in the immune system. In fact, the World Health Organization recognizes more than 200 of these diseases that affect thousands of children and adults in the United States. Years ago, a diagnosis of a primary immunodeficiency meant extremely compromised lives, not just for the patients but for their families as well. Today, with early diagnosis and appropriate therapies, many patients with that same diagnosis can live healthy, productive lives.

One of the greatest challenges faced by individuals diagnosed with primary immunodeficiency disease is finding the right information and resources when they need it. With knowledge and foresight from their personal experience, IDF was founded by families of children with primary immunodeficiency diseases and their physicians to help meet those needs. It is with the spirit and energy of this keen perspective that IDF exists today, thriving as an organization dedicated to individuals living with primary immunodeficiencies.

Since 1980, IDF has provided accurate and timely information for the nearly quarter-million Americans who have been diagnosed with a primary immunodeficiency disease.

Local resident, Kimberly Barna , who suffers from a form of " Immune Deficiencies " describes this disease and how April is a Month to bring awareness ...